About us

Our history

Downright Excellent began as a small group in a living room in Haringey, started by Suzanne Williams who worked with young children with additional needs. Suzanne had received training run by the Down Syndrome Educational Trust (DownsEd) and wanted to put their research into practice.

She moved jobs to Surestart in Islington – which in May 2006 contributed £2000 for a pilot project – and Downright Excellent was born. Suzanne ran the Speech and Language groups for children age 0-4 with Down syndrome.

The group was joined in 2007 by Lucy Newham whose son has Down syndrome. Along with Debs Carlin, another mother, Lucy worked tirelessly applying for funding to expand the group and find specialised premises.

Downright Excellent was registered as a charity in September 2007. Administration and organising was originally done by parents, but is now mainly run by a Board which includes parent trustees.

As a charity, we are continually fundraising. Parents and friends run marathons for us, we receive generous donations and we produce Christmas Cards and other items for sale. Our parents are a constant source of inventive schemes for combining fundraising with family fun days.


Our aims are to help children with Down syndrome in London to develop their life skills so they may reach their full potential as individuals and equally participating members of society through, especially but not exclusively:

  • educational programmes
  • quality play
  • education and support for parents
  • education and support for siblings

Our charity number is 1120863