Policies and resources

Downright Excellent Policies

DEx Sickness Exclusion Policy and Procedures September 2018

DEx Privacy Policy July 2018

DEx Safeguarding Policy October 2019

DEx Child Protection Policy Statement July 2019

DEx Annual Report and Financial Statements 2018-19

Useful Websites

Positive About Down Syndrome: https://positiveaboutdownsyndrome.co.uk/

The Ups of Downs: https://upsofdowns.co.uk/

Down’s Syndrome Association: http://www.downs-syndrome.org.uk

Down Syndrome Education International: https://www.dseinternational.org/en-gb/

Wikipedia entry: http://en.wikipedia.org/wiki/Down_syndrome

NHS: https://www.nhs.uk/conditions/downs-syndrome/

The Down Syndrome Educational Trust: http://www.downsed.org

Downs Syndrome Development Journal: Early Support: https://councilfordisabledchildren.org.uk/help-resources/resources/downs-syndrome-development-journal-early-support

Babies’ Red Book Insert for Down Syndrome: https://www.dsmig.org.uk/information-resources/personal-child-health-record-pchr/

National Association for Down Syndrome – I Love My Life video: https://www.nads.org/i-love-my-life-video/

Information about sleep apnea and insomnia https://www.tuck.com/down-syndrome-and-sleep/

All Party Parliamentary Group on Down Syndrome – Good Practice Guidelines for Education: https://www.dseinternational.org/en-gb/reports/2012/appg-down-syndrome-education-guidelines/

Independent Provider of Special Education Advice (IPSEA): http://www.ipsea.org.uk/

Numicon: https://global.oup.com/education/content/primary/series/numicon/send/

DSActive – Activities for people with Down syndrome: https://www.dsactive.org.uk/

London Taxicard Scheme: http://www.taxicard.org.uk/

CEA Card: http://www.ceacard.co.uk/
Enables a disabled cinema guest to receive a complimentary ticket for someone to go with them when they visit a participating cinema

Family Fund (grants): https://www.familyfund.org.uk/

Other Down syndrome groups

Up on Downs (Hertfordshire): http://upondowns.co.uk/

PSDS (Surrey): http://psds.info/

Upside of Down (East Ham): http://www.upsideofdowns.org.uk/

21 & Co (South West London and Surrey): http://www.21andco.org.uk/

Speech and language therapy – Useful links

DownsEd resources: https://www.down-syndrome.org/en-us/resources/


See and learn website for reading resources and step by step instructions: https://www.seeandlearn.org/en-us/

Down’s Syndrome Association resources: Communication Series: https://www.downs-syndrome.org.uk/for-families-and-carers/growing-up/speech-and-language/communication-series/

and

Speech and Language FAQs: https://www.downs-syndrome.org.uk/for-families-and-carers/growing-up/speech-and-language/speech-and-language/

Downloads

DSA Speech and Language Practical Activities Factsheet: https://www.downs-syndrome.org.uk/for-families-and-carers/growing-up/early-communication/

DSA information booklet: How Much Is Enough? Speech and Language Therapy Provision for School Aged Children who have Down’s Syndrome: http://downsyndromedevelopment.org.uk/wp-content/uploads/2013/03/How_much_is_enough.pdf

Books etc

The Phonics Handbooks

Jolly Phonics wall charts

CDs & DVDs

BBC’s Something Special

Jolly Phonics CDs